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Julie Bove[_2_] Julie Bove[_2_] is offline
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Default For one who shall remain nameless.....


"Tiger Lily" > wrote in message
...
> On 1/4/2012 8:16 PM, Julie Bove wrote:
>> Is Robert saying that perhaps I
>> don't actually have it? That my Dr. was wrong? Or is he somehow
>> laughing
>> at me because I am one of the few who does have it? I don't get it. I
>> really don't. If that was the post that was supposed to be helpful
>> to*me*.
>> It wasn't. Nothing wrong with the post but I just don't get the *helpful
>> to
>> me* factor.

>
> Julie, this summarises your problem
>
> you think people are being MEAN to you when they are trying to HELP you
>
> I responded to assist you and got attacked.......... from what you wrote
> prior you indicated NO ONE tried to help you
>
> i have NEVER seen Robert post maliciously, not EVER


I didn't say that he posted maliciously. The problem as I saw it was that I
honestly could not see a post that would have been helpful to me. I really
could not. Telling that someone is on a liquid diet who has been newly
diagnosed doesn't help me. I am not newly diagnosed and I know what the
gastroparesis diet is. I also know from being on the gastroparesis support
group (I'm not there any more because they all seem to be far worse off than
I am) is that what we can eat varies widely from person to person. For
instance, I can eat a lot of things that others can not.

The reason I said that no one tried to help me was that I asked specifically
what post it was that was supposed to be helpful. And instead of telling me
that it was Wendy's post, or Jan's response, I just got vague things like,
"Well it's there!" Those were not the specific words used, I'm sure but
something to that effect.

I did try to find the post and I got very frustrated by being told that it
(the mystery post) was there and then being chewed out because I wasn't
being thankful about it. How can I be thankful if I don't know what it is?
Yes, people have since told me. It could have been Wendy's post. It could
have been Jan's reply. Neither of which were helpful to me. But he must
have thought one or the other were.

The weird thing to me though was why he would even ping me here! I look as
ASD daily. I don't look at MHD daily because there are so few posts there.
I do go there frequently if there is a current discussion going on where I
feel I might be able to add something. But that isn't very often. So why
he would think he needed to ping me about it seems strange to me.