|
Julie
sigh...it only took me a year to figure out the pattern and was saddened it
took me that long and felt foolish..lol here's the pattern: person A "I hate X and can only eat Y" person b "have you tried Y with some Z to make a full meal you said before you like Z a lot" person A "I NEVER said I like Z I hate Z and NOBODY eats Z thats disgusting!" person b " ok sorry so when you make Y does it spike you?" person A "dont question my diet you idiot gahhhhhh!" person b "huh?..ok nm..so back to Y I ate some today was yummy" person A " thats disgusting who eats Y???..I can only eat X and I can't because my house fell into the ocean and a giant whale ate my cat" person b "but you said before...never mind..." wash rinse repeat some people have short memories and or are a lot more tolerant then I am... I came to the awareness that I am a binary type person so dealing with a person who is not only makes me crazy and helps them not at all so I just avoid trying I dont like or dislike person A I just cant help or engage them and I am much less frustrated KROM "Susan" wrote Wendy, I'm trying to figure out if you're a saint, a masochist, or just plum nuts. ;-) Susan |
Julie
On Fri, 6 Jan 2012 13:45:45 -0600, "KROM" > wrote:
>sigh...it only took me a year to figure out the pattern and was saddened it >took me that long and felt foolish..lol > >here's the pattern: > >person A > >"I hate X and can only eat Y" > >person b > >"have you tried Y with some Z to make a full meal you said before you like Z >a lot" > >person A > >"I NEVER said I like Z I hate Z and NOBODY eats Z that’s disgusting!" > >person b > >" ok sorry so when you make Y does it spike you?" > >person A > >"don’t question my diet you idiot gahhhhhh!" > >person b > >"huh?..ok nm..so back to Y I ate some today was yummy" > >person A > >" that’s disgusting who eats Y???..I can only eat X and I can't because my >house fell into the ocean and a giant whale ate my cat" > >person b > >"but you said before...never mind..." > >wash rinse repeat > >some people have short memories and or are a lot more tolerant then I am... > >I came to the awareness that I am a binary type person so dealing with a >person who is not only makes me crazy and helps them not at all so I just >avoid trying > >I don’t like or dislike person A I just cant help or engage them and I am >much less frustrated > >KROM > You aren't imagining it. That is exactly how it goes down...... Unfortunate isn't it? None so blind as those who won't see. Evelyn |
Julie
On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote:
>On 1/6/2012 5:22 AM, Evelyn wrote: >> I was told to show up for my stomach surgery before 8AM after having >> fasted for two days, and no water for 24 hrs before. They never >> operated on me until 5 PM that evening. It was a crazy marathon that >> weekend, but I did get to go home a day and a half later. >> >> I don't regret having done it! I am doing so well medically, and just >> discovered that I lost another ten lbs in the last month! >> >> Evelyn > >oh my Evelyn, my stomach would be GROWLING so hard if i had to fast that >long! > >prior to the surgery, i was asked how i feel.... hungry? > >i said 'oh ya, but the day surgery ward has promised me an egg salad >sandwich when i get back!' >lol > >they had turkey or roast beef, oh well :D >i still was HAPPY to be eating > >kate Kate, the first day of the "fast" I was allowed to have cream soups, but they had to be blenderized. The second day only clear broth or jello, with no liquid after midnight. The third day was the day I had to show up for the surgery and I was wildly hungry and thirsty by then. Getting through THAT day was pretty awful, since it was just wait, wait, wait. Add to that the fact that you get NO sleep in a hospital after the surgery was over with, it was a real hassle. I slept for almost 15 hours after coming home, I was so exhausted and needed sleep so badly. Evelyn |
Julie
On Fri, 06 Jan 2012 12:15:46 -0700, Tiger Lily > wrote:
>On 1/6/2012 5:22 AM, Evelyn wrote: >> I don't regret having done it! I am doing so well medically, and just >> discovered that I lost another ten lbs in the last month! >> >> Evelyn > >congrats on the weight loss, you didn't lose it, i found it! > >lol > >kate It is a constant struggle, isn't it? Evelyn |
Julie
if people got the fact that we aren't "retarded" and that there's typically
a genius inside there just hidden they'd "get it" most acknowledge people like Einstein had it...along with most brilliant people..they just were able to externalize better. I know a guy who had seizures growing up in the 50's who spent his entire life in institutions and was treated like a 2 year old his entire life and was never taught to read write etc. this man clearly we know now could have been 100 percent functional had they treated him differently. it infuriates me I always think of that guy who everyone thought was a vegetable until he got a keyboard and could finally communicate and now writes books if you look at Steven hawking now and he didnt have his tech to communicate..and we treated him how we often treat people we feel are disabled..then all his genius would be lost due to our need to judge and not understand KROM "Ozgirl" wrote in message ... "KROM" > wrote in message ... > she and I are similar in that I too used to arrange my room with my toys > in a certain way. > > I WAS playing with the toys but in my head which was SOOOO much belter! > > remember autistics and people with Asperger's live in our heads..we are > tactile with feels and smells because they heighten the movie in our heads Jasmine lives very much in her head. She laughs uncontrollably sometimes when alone as well. She feels just about anything she picks up before she decides to hold on to it or not. When she was younger she shook objects, if they rattled they were acceptable. She hand flaps a lot too. > so imagine your using a star trek holodeck which is what we got in our > heads and your simulation is a Hawaii beach and instead of tropical > breezes and coconut ...(her towels)...your smelling feet and armpit > orders..(new towels)....it totally ruins the illusion so of course your > going to be mad! hee hee, mad is understatement here ;) > so with her the items are placeholders for her in head movies..think of it > like a menu on a dvd or index on a book they are not important in > themselves ..we dont spend hours watching the dvd menu..we still need it > though to play the scenes we want and see the extras etc. > > hope that makes sense Perfect sense. Giving in to her obvious autistic needs is a bone of contention in my family. When the kids were young and were share cared (50% with me and the other with their dad) their dad and his partner were always trying to stop her from hand flapping and holding onto special objects like the wet rag etc. She was totally miserable and her happy go lucky personality went very flat. I ended up putting my foot down about it. They did change reluctantly and I didn't have to keep her with me 100%. That wouldn't have been an ideal thing at all so I glad they compromised. I have one rule only, the wet cloth doesn't leave the house and she is accepting of that but at school she usually picks an object that she holds onto all day, a furry toy, or piece o dry cloth or a dangly thing, her choice. |
Julie
it may help to think of him as a person buried into their phone...sure they
are ignoring you and yes it feels frustrating but they are still a person. or there's the island or planet analogy...just because we live in different places and dont communicate it doesnt mean we dont exist. very smart video game players have died from being so immersed in their games they ignore the outside world..thats much like a autistic/Asperger's person is...it painful to leave the great world in their heads to interact with the dull "real world" some can..many cannot at all but take comfort that they are ok in there..just treat them well and they will know it...might even draw them out a bit..but that shouldnt be the end all be all for you. think of it like this..if your family went to Disney world without you..would you love them less..just cause they aren't in your presence? you know they are there..its enough KROM "Nick Cramer" wrote Thanks, KROM. This will help me understand/deal with my severely autistic grandson when he comes over, which I've had great difficulty with in the past. From what my (step)daughter and son-in-law have told me, they don't expect that he'll ever be able to fend for himself. |
Julie
Evelyn > wrote:
: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: : Kate, the first day of the "fast" I was allowed to have cream soups, : but they had to be blenderized. The second day only clear broth or : jello, with no liquid after midnight. The third day was the day I had : to show up for the surgery and I was wildly hungry and thirsty by : then. Getting through THAT day was pretty awful, since it was just : wait, wait, wait. Add to that the fact that you get NO sleep in a : hospital after the surgery was over with, it was a real hassle. I : slept for almost 15 hours after coming home, I was so exhausted and : needed sleep so badly. : Evelyn My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I had fasted the precious night and no water. I arrived for the early morning surgery adn was put on a gurneywhich was very hard on my broken arm and waited, and waited and waited. finally they came in and said the equitpment was up at the Catskill Hospital adn had to be brough down and sterilized, so I waited some more. Finally around 7PM they came in and said the surgery was to be tomorrow as it was now too late, I had been, meanwhile fasting all this time. I was sent to a room and it was, of course, after meal hours so the food supply place was closed. they scrounged around and finall came up with A HAM SANDWICH, which I could not eat really unless in greater exstremis. they scrounged a bit more and found some ceackers adn 2 sliced of cheese, which I devoured. then I had to start fasting again for the surgery the next day! AA most unpleasant experience except that the floor nurse took pity on me and helped wash my hair which, since the arm fracture had not been washed. Thas ho;sital had the nerve to charge the insurance for the twonights even though one was their fault! Wendy |
Julie
On 1/6/2012 12:53 PM, Evelyn wrote:
> On Fri, 06 Jan 2012 12:15:46 -0700, Tiger > wrote: > >> On 1/6/2012 5:22 AM, Evelyn wrote: >>> I don't regret having done it! I am doing so well medically, and just >>> discovered that I lost another ten lbs in the last month! >>> >>> Evelyn >> >> congrats on the weight loss, you didn't lose it, i found it! >> >> lol >> >> kate > > > It is a constant struggle, isn't it? > > Evelyn LOL, up/down all the time at one point i was down 90 lbs from my 'high point' now down 70 lbs........... and i've probably lost 135 lbs over the up/down stages a far cry from the days when i struggled to Keep the Weight ON! but i'm not that young anymore eh! lol kate |
Julie
On 1/6/2012 1:03 PM, Susan wrote:
> I didn't take any pain killers for sinus surgery, either, it didn't hurt. > > What was painful was my airway, where the tubing must've been really > tight during anesthesia. > > Susan oh, i have woken up from sinus surgery ready to KILL SOMEONE, demanding to know WHAT DID YOU DO??? lol the roof of my mouth was covered in blisters this morning...... and uncomfortable to the point where i took an antihystamine then i read the FINE PRINT on my discharge papers......... the line where it told me to NOT take an antihystamine sigh but, 45 min after i took the antihystamine, the blistering started to abate and 2 hours later, i now have no blisters what do you do? (i have a very tiny mouth/roof...... child sized or smaller and i'm sure the roof of my mouth was being rubbed considerably..... when i woke from surgery, my voice was more baratone and i was so dry i couldn't speak to ask for WETNESS! LOL) kate |
Julie
"Evelyn" > wrote in message
... > On Fri, 6 Jan 2012 07:13:30 -0800, "Julie Bove" > > wrote: > >> >>"Evelyn" > wrote in message . .. >>> On Thu, 5 Jan 2012 19:08:39 -0800, "Julie Bove" >>> > wrote: >>> >>>> >>>>"Evelyn" > wrote in message m... >>>>> On Thu, 5 Jan 2012 18:40:40 -0800, "Julie Bove" >>>>> > wrote: >>>>> >>>>>> >>>>>>"Evelyn" > wrote in message >>>>>>news:efgcg75sbkl7gdjusgepf5llt9rqhiddv7@4ax. com... >>>>>>> On Thu, 5 Jan 2012 16:28:16 -0800, "Julie Bove" >>>>>>> > wrote: >>>>>>> >>>>>>>> >>>>>>>>"Evelyn" > wrote in message >>>>>>>>news:i3ecg7l8duej2hvr88t1bupg13nc31lenj@4a x.com... >>>>>>>>> On Thu, 5 Jan 2012 14:17:46 -0800, "Julie Bove" >>>>>>> >>>>>>>> >>>>>>>>I do like soup. As I said to Wendy. I have no problems digesting >>>>>>>>soup. >>>>>>>>I >>>>>>>>don't generally eat meat in a soup. And I don't have problems with >>>>>>>>canned >>>>>>>>soups. Why fix something that isn't broken? >>>>>>> >>>>>>> It isn't a case of being "broken" it is a matter of variety and >>>>>>> quality, that's all. But if you are satisfied with canned soup by >>>>>>> all means enjoy it....... >>>>>> >>>>>>Generally when I make soup it is only because I have a bunch of >>>>>>vegetables >>>>>>to use up. I rarely plan to make soup just because I want it. I used >>>>>>to >>>>>>make French Onion. But nobody else would eat it. I have some that I >>>>>>bought >>>>>>at Costco. It comes frozen. That is a big issue with me. I have an >>>>>>extreme >>>>>>dislike for preparing things from a frozen state and that's what you >>>>>>have >>>>>>to >>>>>>do with this. I have some in the microwave now. My hands are still >>>>>>cold >>>>>>from bringing it in from the freezer and struggling to get it out of >>>>>>the >>>>>>package. But it was pretty cheap and even though it is a tad saltier >>>>>>than >>>>>>I >>>>>>would prefer, it's not bad soup. And I know it is safe for me to eat >>>>>>because it lists all of the ingredients. >>>>>> >>>>>>I used to get soup in restaurants. Now that is not a safe thing for >>>>>>me >>>>>>to >>>>>>do given my food allergies. Most restaurants do not cook soup from >>>>>>scratch >>>>>>anyway. They use a soup base and that may contain things I don't want >>>>>>to >>>>>>eat. I am also very picky as to what canned soups I will buy. There >>>>>>are >>>>>>only a few. Most contain things I can't or won't eat. Like soy >>>>>>protein >>>>>>or >>>>>>high fructose corn syrup. Yes, I might make an exception once in a >>>>>>while >>>>>>if >>>>>>I am low on food in the house and if I am really sick and unable to >>>>>>cook >>>>>>anything. Then and only then might I eat a soup containing those >>>>>>things. >>>>>> >>>>>>But mostly when I am sick I will eat chicken soup. That's about the >>>>>>only >>>>>>time I will eat it. I won't post what I put in it because you have >>>>>>issues >>>>>>with it. >>>>> >>>>> >>>>> I recall from past conversations, that you do not put a chicken into >>>>> it. That's OK. I like chicken in mine. I like it to be so rich >>>>> with chicken that when it gets cold it turns to jelly. >>>> >>>>I put canned chicken. >>> >>> I hate to say it, but yes, you are right that would absolutely not be >>> acceptable to me at all in flavor or texture. >>> >>> I have some canned chicken in the house because on the very rarest of >>> occasions it is good for a quickie chicken salad. >> >>See? There you go. You say *I* can't say stuff like that but it is fine >>for you to say it about what I eat. > > > Not quite. But then I will not argue with you about it. > > Evelyn :) |
Julie
On 1/6/2012 12:52 PM, Evelyn wrote:
> On Fri, 06 Jan 2012 12:15:09 -0700, Tiger > wrote: > >> On 1/6/2012 5:22 AM, Evelyn wrote: >>> I was told to show up for my stomach surgery before 8AM after having >>> fasted for two days, and no water for 24 hrs before. They never >>> operated on me until 5 PM that evening. It was a crazy marathon that >>> weekend, but I did get to go home a day and a half later. >>> >>> I don't regret having done it! I am doing so well medically, and just >>> discovered that I lost another ten lbs in the last month! >>> >>> Evelyn >> >> oh my Evelyn, my stomach would be GROWLING so hard if i had to fast that >> long! >> >> prior to the surgery, i was asked how i feel.... hungry? >> >> i said 'oh ya, but the day surgery ward has promised me an egg salad >> sandwich when i get back!' >> lol >> >> they had turkey or roast beef, oh well :D >> i still was HAPPY to be eating >> >> kate > > > Kate, the first day of the "fast" I was allowed to have cream soups, > but they had to be blenderized. The second day only clear broth or > jello, with no liquid after midnight. The third day was the day I had > to show up for the surgery and I was wildly hungry and thirsty by > then. Getting through THAT day was pretty awful, since it was just > wait, wait, wait. Add to that the fact that you get NO sleep in a > hospital after the surgery was over with, it was a real hassle. I > slept for almost 15 hours after coming home, I was so exhausted and > needed sleep so badly. > > Evelyn the sleep is a typical GA reaction for me i was stunned to wake up as 'perky?' as i feel today but........ 4 hours later, i'm ready for sleep again lol kate |
Julie
"Tiger Lily" > wrote in message ... > On 1/5/2012 8:08 AM, W. Baker wrote: >> Tiger > wrote: >> : On 1/4/2012 8:24 PM, Ozgirl wrote: >> :>> The diet that Jan referred to is the stage one diet. I am waaay >> :>> beyond that. I believe there are four stages of diets. Maybe only >> :>> three. But for me to be on stage one at this point would be just >> :>> plain silly! >> :> >> :> Thanks for expanding on that. I know little about gastroparesis and >> that >> :> is the sort of information people need to know about. >> >> >> : interesting >> >> : so, a blenderised meat in juice wouldn't ameleorate the digestion >> : problems for protein, an essential building block for the body? >> >> : i mean, beans are full of fibre and that causes lots of problems, >> : putting them thru a blender won't remove the fibre >> >> : kate >> >> But woulln't it at lest get it past the stomach which seems to be a big >> part of the Gastorparesis problem Julie mentions, that feeling fuul >> because the stomach won't empty , particularly wit hard to igest meat and >> fibel? >> >> Wendy > > Just guessing, but given enough fluid to push the fibrous beans past the > GP point would probably help. The stomach's lack of ability/mobility to > move is a huge problem with fibre gumming up the works. > > MiniMed make an electric stimulator (similar idea to a pacemaker) that > allow people with GP to "function closer to normal". Wondering why Julie > hasn't been given that option with all the problems the GP causes her. :( Because it hasn't proved to be very effective. |
Julie
In article >,
Tiger Lily > wrote: > On 1/5/2012 3:30 PM, Peppermint Patootie wrote: > > In >, > > Tiger > wrote: > > > >> yes, Diet for a Small Planet is an old book............ the information > >> in it isn't > > > > Um... the information about combining proteins is actually inaccurate. > > Sorry! > > > > PP > > ooooooooooohhh > > ok, in 1994 the dietician was still saying that to me and other > vegetarian folks > > (gonna do some 'current' looking less than 18 yrs old! LOL) > > kate Yeah. Even Lappe acknowledged it recently (within the past 10 years?). There was a discussion of this in one of the newsgroups I'm in. I'd thought it was asd. PP -- "What you fail to understand is that criticising established authority by means of argument and evidence is a crucial aspect of how science works." - Chris Malcolm |
Julie
"Tiger Lily" > wrote in message ... > On 1/4/2012 5:58 PM, Ozgirl wrote: >> Well, I don't think I will do it again, the distress was too bad, it >> really got to me. Removing her overhead light bulb is less stressful >> and >> relatively effective. > > I had a 'lost it' moment with teenlet (then kidlet) many years ago. > After i calmed down, i wrote up everything so we could discuss how i > felt when he did/said (whatever the issue was), why i wanted his > behaviour to change and what *I* was willing to do. > > I know you can't do that with Jazzy......... the light bulb sounds > good! > > Give yourself a break all the same! Little monkey turned the fridge off twice yesterday! |
Julie
"KROM" > wrote in message ... > I dont like or dislike person A I just cant help or engage them and I > am much less frustrated > > KROM I wish everyone chose to disengage :) |
Julie
"KROM" > wrote in message ... > if people got the fact that we aren't "retarded" and that there's > typically a genius inside there just hidden they'd "get it" > > most acknowledge people like Einstein had it...along with most > brilliant people..they just were able to externalize better. > > I know a guy who had seizures growing up in the 50's who spent his > entire life in institutions and was treated like a 2 year old his > entire life and was never taught to read write etc. > > this man clearly we know now could have been 100 percent functional > had they treated him differently. > > it infuriates me > > I always think of that guy who everyone thought was a vegetable until > he got a keyboard and could finally communicate and now writes books > > if you look at Steven hawking now and he didnt have his tech to > communicate..and we treated him how we often treat people we feel are > disabled..then all his genius would be lost due to our need to judge > and not understand > > KROM All very true. Sadly Jazz is "retarded" but my son isn't. He has friends who accept him for who he is but I do know his "traits" are off putting to others. The lack of compassion is one big thing. That's what most people only see, I see all the traits which is why I'd like him to assessed to see if there are ways I don't know about to help him be less obnoxious-appearing to others. Typical example, he walks into my room at 5 am, shakes me awake to talk about an iPhone app or something not life threatening. I say, come back later I have had no sleep because of migraine or whatever. His answer will be along the lines of well I have been up all night too. He doesn't see the problem in that exchange. His needs have to be dealt with immediately or he unravels. Now I know he has that need and because of the many other Asperger's traits that he can't help it. But to others who don't know him like I do they see someone strictly without compassion or concern for others. |
Julie
On Fri, 6 Jan 2012 20:18:24 +0000 (UTC), "W. Baker" >
wrote: >Evelyn > wrote: >: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: > > >: Kate, the first day of the "fast" I was allowed to have cream soups, >: but they had to be blenderized. The second day only clear broth or >: jello, with no liquid after midnight. The third day was the day I had >: to show up for the surgery and I was wildly hungry and thirsty by >: then. Getting through THAT day was pretty awful, since it was just >: wait, wait, wait. Add to that the fact that you get NO sleep in a >: hospital after the surgery was over with, it was a real hassle. I >: slept for almost 15 hours after coming home, I was so exhausted and >: needed sleep so badly. > >: Evelyn > >My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I >had fasted the precious night and no water. I arrived for the early >morning surgery adn was put on a gurneywhich was very hard on my broken >arm and waited, and waited and waited. finally they came in and said the >equitpment was up at the Catskill Hospital adn had to be brough down and >sterilized, so I waited some more. Finally around 7PM they came in and >said the surgery was to be tomorrow as it was now too late, I had been, >meanwhile fasting all this time. I was sent to a room and it was, of >course, after meal hours so the food supply place was closed. they >scrounged around and finall came up with A HAM SANDWICH, which I could not >eat really unless in greater exstremis. they scrounged a bit more and >found some ceackers adn 2 sliced of cheese, which I devoured. then I had >to start fasting again for the surgery the next day! AA most unpleasant >experience except that the floor nurse took pity on me and helped wash my >hair which, since the arm fracture had not been washed. > >Thas ho;sital had the nerve to charge the insurance for the twonights even >though one was their fault! > >Wendy They are better nowadays, Wendy. They also removed a separate charge from a bill for a procedure my hubby had a couple of years ago, which was their fault. I was grateful for that! When I was there with my broken shoulder back in '04 they were very good and I had no problems with them. I was there this past year with pneumonia and they were excellent. Things are improving. Evelyn |
Julie
Evelyn > wrote:
: On Fri, 6 Jan 2012 20:18:24 +0000 (UTC), "W. Baker" > : wrote: : >Evelyn > wrote: : >: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: : > : > : >: Kate, the first day of the "fast" I was allowed to have cream soups, : >: but they had to be blenderized. The second day only clear broth or : >: jello, with no liquid after midnight. The third day was the day I had : >: to show up for the surgery and I was wildly hungry and thirsty by : >: then. Getting through THAT day was pretty awful, since it was just : >: wait, wait, wait. Add to that the fact that you get NO sleep in a : >: hospital after the surgery was over with, it was a real hassle. I : >: slept for almost 15 hours after coming home, I was so exhausted and : >: needed sleep so badly. : > : >: Evelyn : > : >My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I : >had fasted the precious night and no water. I arrived for the early : >morning surgery adn was put on a gurneywhich was very hard on my broken : >arm and waited, and waited and waited. finally they came in and said the : >equitpment was up at the Catskill Hospital adn had to be brough down and : >sterilized, so I waited some more. Finally around 7PM they came in and : >said the surgery was to be tomorrow as it was now too late, I had been, : >meanwhile fasting all this time. I was sent to a room and it was, of : >course, after meal hours so the food supply place was closed. they : >scrounged around and finall came up with A HAM SANDWICH, which I could not : >eat really unless in greater exstremis. they scrounged a bit more and : >found some ceackers adn 2 sliced of cheese, which I devoured. then I had : >to start fasting again for the surgery the next day! AA most unpleasant : >experience except that the floor nurse took pity on me and helped wash my : >hair which, since the arm fracture had not been washed. : > : >Thas ho;sital had the nerve to charge the insurance for the twonights even : >though one was their fault! : > : >Wendy : They are better nowadays, Wendy. They also removed a separate charge : from a bill for a procedure my hubby had a couple of years ago, which : was their fault. I was grateful for that! : When I was there with my broken shoulder back in '04 they were very : good and I had no problems with them. I was there this past year : with pneumonia and they were excellent. Things are improving. : Evelyn That's about when I was there. I broke the arm a few days ater Labor day and IIRC we were both sufering about the same time and grousing on asd. Boy, was that quite literally , a painful time in our lives:-) Wendy |
Julie
On 1/6/2012 3:45 PM, Peppermint Patootie wrote:
> Yeah. Even Lappe acknowledged it recently (within the past 10 years?). > > There was a discussion of this in one of the newsgroups I'm in. I'd > thought it was asd. > > PP very interesting PP i would have only skimmed the posts if they were directed to vegan diets, looking for good recipes (some of the best food recipes can be found in vegan cooking!) kate |
Julie
On 1/6/2012 4:03 PM, Ozgirl wrote:
> Little monkey turned the fridge off twice yesterday! arrggghhh whimper and no alarms for that kate |
Julie
On Sat, 7 Jan 2012 01:37:11 +0000 (UTC), "W. Baker" >
wrote: >Evelyn > wrote: >: On Fri, 6 Jan 2012 20:18:24 +0000 (UTC), "W. Baker" > >: wrote: > >: >Evelyn > wrote: >: >: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: >: > >: > >: >: Kate, the first day of the "fast" I was allowed to have cream soups, >: >: but they had to be blenderized. The second day only clear broth or >: >: jello, with no liquid after midnight. The third day was the day I had >: >: to show up for the surgery and I was wildly hungry and thirsty by >: >: then. Getting through THAT day was pretty awful, since it was just >: >: wait, wait, wait. Add to that the fact that you get NO sleep in a >: >: hospital after the surgery was over with, it was a real hassle. I >: >: slept for almost 15 hours after coming home, I was so exhausted and >: >: needed sleep so badly. >: > >: >: Evelyn >: > >: >My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I >: >had fasted the precious night and no water. I arrived for the early >: >morning surgery adn was put on a gurneywhich was very hard on my broken >: >arm and waited, and waited and waited. finally they came in and said the >: >equitpment was up at the Catskill Hospital adn had to be brough down and >: >sterilized, so I waited some more. Finally around 7PM they came in and >: >said the surgery was to be tomorrow as it was now too late, I had been, >: >meanwhile fasting all this time. I was sent to a room and it was, of >: >course, after meal hours so the food supply place was closed. they >: >scrounged around and finall came up with A HAM SANDWICH, which I could not >: >eat really unless in greater exstremis. they scrounged a bit more and >: >found some ceackers adn 2 sliced of cheese, which I devoured. then I had >: >to start fasting again for the surgery the next day! AA most unpleasant >: >experience except that the floor nurse took pity on me and helped wash my >: >hair which, since the arm fracture had not been washed. >: > >: >Thas ho;sital had the nerve to charge the insurance for the twonights even >: >though one was their fault! >: > >: >Wendy > > >: They are better nowadays, Wendy. They also removed a separate charge >: from a bill for a procedure my hubby had a couple of years ago, which >: was their fault. I was grateful for that! > >: When I was there with my broken shoulder back in '04 they were very >: good and I had no problems with them. I was there this past year >: with pneumonia and they were excellent. Things are improving. > >: Evelyn > >That's about when I was there. I broke the arm a few days ater Labor day >and IIRC we were both sufering about the same time and grousing on asd. >Boy, was that quite literally , a painful time in our lives:-) > >Wendy Yes, it surely was. I will never forget how kind you were, Wendy. At that time I thought I would never stop hurting. Hearing from someone who sympathized and knew what it was, was wonderful. Mine happened in November, so it was just after yours. A friend of mine whose husband is a doctor told me NOT to go to the guy who did your surgery. She said I should go to a different one, and I did. That may hold some explanation of the difficulty you had. Evelyn |
Julie
Evelyn > wrote:
> Nick Cramer > wrote: > >Evelyn > wrote: > >> [ . . . . ] > >> There is no ONE and only way to deal with the food issues involved > >> with diabetes. > > > >Yep. When I eat a carby dinner, Jun reminds me to take fatalajon. > > What is fatalajon? I have never heard of it! That's the Thai name for the compressed dried leaves of the Andrographis Paniculata plant. I get it in 100 mg pellets. I take up to five at a time. It's available online, refined and in capsule form, probably at a high price (never checked, so I don't know) from health supplement suppliers. -- Nick, KI6VAV. Support severely wounded and disabled Veterans and their families: https://semperfifund.org https://www.woundedwarriorproject.org/ http://www.specialops.org/ http://www.helpforheroes.org.uk/ ~Semper Fi~ http://www.woundedwarriors.ca/ http://www.legacy.com.au/ ~Semper Fi~ |
Julie
"KROM" > wrote:
> sigh...it only took me a year to figure out the pattern and was saddened > it took me that long and felt foolish..lol > > here's the pattern: > > person A > > "I hate X and can only eat Y" > > person b > > "have you tried Y with some Z to make a full meal you said before you > like Z a lot" > > person A > > "I NEVER said I like Z I hate Z and NOBODY eats Z thats disgusting!" > > person b > > " ok sorry so when you make Y does it spike you?" > > person A > > "dont question my diet you idiot gahhhhhh!" > > person b > > "huh?..ok nm..so back to Y I ate some today was yummy" > > person A > > " thats disgusting who eats Y???..I can only eat X and I can't because > my house fell into the ocean and a giant whale ate my cat" > > person b > > "but you said before...never mind..." > > wash rinse repeat > > some people have short memories and or are a lot more tolerant then I > am... > > I came to the awareness that I am a binary type person so dealing with a > person who is not only makes me crazy and helps them not at all so I just > avoid trying > > I dont like or dislike person A I just cant help or engage them and I > am much less frustrated > > KROM > > "Susan" wrote > Wendy, I'm trying to figure out if you're a saint, a masochist, or just > plum nuts. ;-) > > Susan Thanks for that, KROM. I needed it. -- Nick, KI6VAV. Support severely wounded and disabled Veterans and their families: https://semperfifund.org https://www.woundedwarriorproject.org/ http://www.specialops.org/ http://www.helpforheroes.org.uk/ ~Semper Fi~ http://www.woundedwarriors.ca/ http://www.legacy.com.au/ ~Semper Fi~ |
Julie
"KROM" > wrote:
> it may help to think of him as a person buried into their phone...sure > they are ignoring you and yes it feels frustrating but they are still a > person. Yes. That's what happens. He comes over with his mother and sister and he walks by me like I'm not even there! Now, I really feel like a jerk, because that used to get me angry. > or there's the island or planet analogy...just because we live in > different places and dont communicate it doesnt mean we dont > exist. > > very smart video game players have died from being so immersed in their > games they ignore the outside world..thats much like a > autistic/Asperger's person is...it painful to leave the great world in > their heads to interact with the dull "real world" I know he likes to draw. Maybe, rather than buying him any art stuff, I'll get my wife or daughter to take him and me to an art store and let him pick out some stuff he likes. What do you think, KROM? > some can..many cannot at all but take comfort that they are ok in > there..just treat them well and they will know it...might even draw them > out a bit..but that shouldnt be the end all be all for you. > > think of it like this..if your family went to Disney world without > you..would you love them less..just cause they aren't in your presence? > > you know they are there..its enough > > KROM > > "Nick Cramer" wrote > Thanks, KROM. This will help me understand/deal with my severely autistic > grandson when he comes over, which I've had great difficulty with in the > past. From what my (step)daughter and son-in-law have told me, they don't > expect that he'll ever be able to fend for himself. -- Nick, KI6VAV. Support severely wounded and disabled Veterans and their families: https://semperfifund.org https://www.woundedwarriorproject.org/ http://www.specialops.org/ http://www.helpforheroes.org.uk/ ~Semper Fi~ http://www.woundedwarriors.ca/ http://www.legacy.com.au/ ~Semper Fi~ |
Julie
"KROM" > wrote:
> ooh that does look good! > "Susan" wrote in message ... > On 1/6/2012 3:12 PM, KROM wrote: > > it may help to think of him as a person buried into their phone...sure > > they are ignoring you and yes it feels frustrating but they are still a > > person. > This book really opened my eyes to the internal experience from another > perspective: > http://www.amazon.com/Nobody-Nowhere...raphy-Autistic > /dp/0380722178 Thanks, Susan -- Nick, KI6VAV. Support severely wounded and disabled Veterans and their families: https://semperfifund.org https://www.woundedwarriorproject.org/ http://www.specialops.org/ http://www.helpforheroes.org.uk/ ~Semper Fi~ http://www.woundedwarriors.ca/ http://www.legacy.com.au/ ~Semper Fi~ |
Julie
Evelyn > wrote:
: On Sat, 7 Jan 2012 01:37:11 +0000 (UTC), "W. Baker" > : wrote: : >Evelyn > wrote: : >: On Fri, 6 Jan 2012 20:18:24 +0000 (UTC), "W. Baker" > : >: wrote: : > : >: >Evelyn > wrote: : >: >: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: : >: > : >: > : >: >: Kate, the first day of the "fast" I was allowed to have cream soups, : >: >: but they had to be blenderized. The second day only clear broth or : >: >: jello, with no liquid after midnight. The third day was the day I had : >: >: to show up for the surgery and I was wildly hungry and thirsty by : >: >: then. Getting through THAT day was pretty awful, since it was just : >: >: wait, wait, wait. Add to that the fact that you get NO sleep in a : >: >: hospital after the surgery was over with, it was a real hassle. I : >: >: slept for almost 15 hours after coming home, I was so exhausted and : >: >: needed sleep so badly. : >: > : >: >: Evelyn : >: > : >: >My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I : >: >had fasted the precious night and no water. I arrived for the early : >: >morning surgery adn was put on a gurneywhich was very hard on my broken : >: >arm and waited, and waited and waited. finally they came in and said the : >: >equitpment was up at the Catskill Hospital adn had to be brough down and : >: >sterilized, so I waited some more. Finally around 7PM they came in and : >: >said the surgery was to be tomorrow as it was now too late, I had been, : >: >meanwhile fasting all this time. I was sent to a room and it was, of : >: >course, after meal hours so the food supply place was closed. they : >: >scrounged around and finall came up with A HAM SANDWICH, which I could not : >: >eat really unless in greater exstremis. they scrounged a bit more and : >: >found some ceackers adn 2 sliced of cheese, which I devoured. then I had : >: >to start fasting again for the surgery the next day! AA most unpleasant : >: >experience except that the floor nurse took pity on me and helped wash my : >: >hair which, since the arm fracture had not been washed. : >: > : >: >Thas ho;sital had the nerve to charge the insurance for the twonights even : >: >though one was their fault! : >: > : >: >Wendy : > : > : >: They are better nowadays, Wendy. They also removed a separate charge : >: from a bill for a procedure my hubby had a couple of years ago, which : >: was their fault. I was grateful for that! : > : >: When I was there with my broken shoulder back in '04 they were very : >: good and I had no problems with them. I was there this past year : >: with pneumonia and they were excellent. Things are improving. : > : >: Evelyn : > : >That's about when I was there. I broke the arm a few days ater Labor day : >and IIRC we were both sufering about the same time and grousing on asd. : >Boy, was that quite literally , a painful time in our lives:-) : > : >Wendy : Yes, it surely was. I will never forget how kind you were, Wendy. At : that time I thought I would never stop hurting. Hearing from someone : who sympathized and knew what it was, was wonderful. Mine happened in : November, so it was just after yours. A friend of mine whose husband : is a doctor told me NOT to go to the guy who did your surgery. She : said I should go to a different one, and I did. That may hold some : explanation of the difficulty you had. : Evelyn I came through the Margaretville Hospital, which is now connected to the Kingston one, which has more facilities. I was initially treated in Margaretville and then shipped down in ambulance to Kingston with Syd following in our car(I could not sit in a carwith the loose bones(3 fractures in the humerus) I was just given a doctor, who originally set it, but then told aobut the rodding possibility. I had no local connections. The doctor seems to have done a good job, but was kind of soulless, while his assistant was a lovely and very competent man. I forget all their names. Wendy |
Julie
On Sat, 7 Jan 2012 16:56:12 +0000 (UTC), "W. Baker" >
wrote: >Evelyn > wrote: >: On Sat, 7 Jan 2012 01:37:11 +0000 (UTC), "W. Baker" > >: wrote: > >: >Evelyn > wrote: >: >: On Fri, 6 Jan 2012 20:18:24 +0000 (UTC), "W. Baker" > >: >: wrote: >: > >: >: >Evelyn > wrote: >: >: >: On Fri, 06 Jan 2012 12:15:09 -0700, Tiger Lily > wrote: >: >: > >: >: > >: >: >: Kate, the first day of the "fast" I was allowed to have cream soups, >: >: >: but they had to be blenderized. The second day only clear broth or >: >: >: jello, with no liquid after midnight. The third day was the day I had >: >: >: to show up for the surgery and I was wildly hungry and thirsty by >: >: >: then. Getting through THAT day was pretty awful, since it was just >: >: >: wait, wait, wait. Add to that the fact that you get NO sleep in a >: >: >: hospital after the surgery was over with, it was a real hassle. I >: >: >: slept for almost 15 hours after coming home, I was so exhausted and >: >: >: needed sleep so badly. >: >: > >: >: >: Evelyn >: >: > >: >: >My surgery story-When I was in the Kingston Hospital(Evelyn knows it), I >: >: >had fasted the precious night and no water. I arrived for the early >: >: >morning surgery adn was put on a gurneywhich was very hard on my broken >: >: >arm and waited, and waited and waited. finally they came in and said the >: >: >equitpment was up at the Catskill Hospital adn had to be brough down and >: >: >sterilized, so I waited some more. Finally around 7PM they came in and >: >: >said the surgery was to be tomorrow as it was now too late, I had been, >: >: >meanwhile fasting all this time. I was sent to a room and it was, of >: >: >course, after meal hours so the food supply place was closed. they >: >: >scrounged around and finall came up with A HAM SANDWICH, which I could not >: >: >eat really unless in greater exstremis. they scrounged a bit more and >: >: >found some ceackers adn 2 sliced of cheese, which I devoured. then I had >: >: >to start fasting again for the surgery the next day! AA most unpleasant >: >: >experience except that the floor nurse took pity on me and helped wash my >: >: >hair which, since the arm fracture had not been washed. >: >: > >: >: >Thas ho;sital had the nerve to charge the insurance for the twonights even >: >: >though one was their fault! >: >: > >: >: >Wendy >: > >: > >: >: They are better nowadays, Wendy. They also removed a separate charge >: >: from a bill for a procedure my hubby had a couple of years ago, which >: >: was their fault. I was grateful for that! >: > >: >: When I was there with my broken shoulder back in '04 they were very >: >: good and I had no problems with them. I was there this past year >: >: with pneumonia and they were excellent. Things are improving. >: > >: >: Evelyn >: > >: >That's about when I was there. I broke the arm a few days ater Labor day >: >and IIRC we were both sufering about the same time and grousing on asd. >: >Boy, was that quite literally , a painful time in our lives:-) >: > >: >Wendy > > >: Yes, it surely was. I will never forget how kind you were, Wendy. At >: that time I thought I would never stop hurting. Hearing from someone >: who sympathized and knew what it was, was wonderful. Mine happened in >: November, so it was just after yours. A friend of mine whose husband >: is a doctor told me NOT to go to the guy who did your surgery. She >: said I should go to a different one, and I did. That may hold some >: explanation of the difficulty you had. > >: Evelyn > >I came through the Margaretville Hospital, which is now connected to the >Kingston one, which has more facilities. I was initially treated in >Margaretville and then shipped down in ambulance to Kingston with Syd >following in our car(I could not sit in a carwith the loose bones(3 >fractures in the humerus) I was just given a doctor, who originally set >it, but then told aobut the rodding possibility. I had no local >connections. The doctor seems to have done a good job, but was kind of >soulless, while his assistant was a lovely and very competent man. I >forget all their names. > >Wendy I can relate. What I do remember was the excruciating pain. I was unable to think it was so bad. Evelyn |
Julie
for me it wasnt that I didnt care how others felt..it was more like
"getting the thought out" I've been sort of lucky with the analogies lately so hers another.. imagine running a marathon to get to somebody and trying to talk to them..your loud and gasping etc because of the effort you put in to deliver the message and are annoyed that the recover isn't happy to receive it after all that effort. see we are so internal that its a huge effort to go outward and when its not well received we get upset. I still often do but have learned to view it as "yes my message was important but the receiver isn't as tuned in to me" so i expect them to not get it and it upsets me less. though it is very frustrating to me when a person asks me to repeat myself etc. it is a huge effort to talk to people for me and like after the office Christmas party I am exhausted from the effort to be external luckily there was food and I pretended to be very intent on my meal..lol KROM "Ozgirl" wrote ... All very true. Sadly Jazz is "retarded" but my son isn't. He has friends who accept him for who he is but I do know his "traits" are off putting to others. The lack of compassion is one big thing. That's what most people only see, I see all the traits which is why I'd like him to assessed to see if there are ways I don't know about to help him be less obnoxious-appearing to others. Typical example, he walks into my room at 5 am, shakes me awake to talk about an iPhone app or something not life threatening. I say, come back later I have had no sleep because of migraine or whatever. His answer will be along the lines of well I have been up all night too. He doesn't see the problem in that exchange. His needs have to be dealt with immediately or he unravels. Now I know he has that need and because of the many other Asperger's traits that he can't help it. But to others who don't know him like I do they see someone strictly without compassion or concern for others. |
Julie
Certainly!
you might find a medium you can both do together to reach him a bit. I would try clay as thats tactile and let them pick out whatever else they wish to use what you do is dont interrupt his drawing/painting etc...you get on the floor and do your own with supplies for him to join in if he wishes if he does engage dont freak out..stay quiet and calm and ask him pertinent questions like "I like that can you show me how to make one?" dont ask what the thing is or guess at it if you dont know..that will frustrate and shut them down KROM "Nick Cramer" wrote ... I know he likes to draw. Maybe, rather than buying him any art stuff, I'll get my wife or daughter to take him and me to an art store and let him pick out some stuff he likes. What do you think, KROM? ~ |
Julie
In article >, "Julie Bove" >
wrote: > "Peppermint Patootie" > wrote in message > ... > > In article >, "Julie Bove" > > > wrote: > > > >> I was never FORCED to eat oatmeal or anything else. > > > > In article >, "Julie Bove" > > > wrote: > > > >> And my mom used to insist that we eat oatmeal for breakfast then stand > >> over us making faces and gagging noises and asking us how we could eat it? > > Right! But she never *forced* us to eat it. Telling us to eat it and > forcing it down our throats are two different things. and if you didn't eat it, what did she do? |
Julie
In article >, "Julie Bove" >
wrote: > Generally when I make soup it is only because I have a bunch of vegetables > to use up. I rarely plan to make soup just because I want it. I used to > make French Onion. But nobody else would eat it. I have some that I bought > at Costco. It comes frozen. That is a big issue with me. I have an extreme > dislike for preparing things from a frozen state and that's what you have to > do with this. I have some in the microwave now. My hands are still cold > from bringing it in from the freezer and struggling to get it out of the > package. But it was pretty cheap and even though it is a tad saltier than I > would prefer, it's not bad soup. And I know it is safe for me to eat > because it lists all of the ingredients. gee, if someone would only make something you could put on your hands to keep them warm |
Julie
Evelyn > wrote:
: On Sat, 7 Jan 2012 16:56:12 +0000 (UTC), "W. Baker" > : wrote: : >: > : >: >That's about when I was there. I broke the arm a few days ater Labor day : >: >and IIRC we were both sufering about the same time and grousing on asd. : >: >Boy, was that quite literally , a painful time in our lives:-) : >: > : >: >Wendy : > : > : >: Yes, it surely was. I will never forget how kind you were, Wendy. At : >: that time I thought I would never stop hurting. Hearing from someone : >: who sympathized and knew what it was, was wonderful. Mine happened in : >: November, so it was just after yours. A friend of mine whose husband : >: is a doctor told me NOT to go to the guy who did your surgery. She : >: said I should go to a different one, and I did. That may hold some : >: explanation of the difficulty you had. : > : >: Evelyn : > : >I came through the Margaretville Hospital, which is now connected to the : >Kingston one, which has more facilities. I was initially treated in : >Margaretville and then shipped down in ambulance to Kingston with Syd : >following in our car(I could not sit in a carwith the loose bones(3 : >fractures in the humerus) I was just given a doctor, who originally set : >it, but then told aobut the rodding possibility. I had no local : >connections. The doctor seems to have done a good job, but was kind of : >soulless, while his assistant was a lovely and very competent man. I : >forget all their names. : > : >Wendy : I can relate. What I do remember was the excruciating pain. I was : unable to think it was so bad. : Evelyn Yes, indeed! When we had our auto accidnet near Shandaken a few years later, I remember moving everything and lying there unable to see because of the blood in my eyes thinking that I knew I hadn't broken any bones becuse there was nonof that pain, just abrasion, bruise adn head banged all much less severe. Wendy |
Julie
On Sat, 7 Jan 2012 21:15:39 +0000 (UTC), "W. Baker" >
wrote: >Evelyn > wrote: >: On Sat, 7 Jan 2012 16:56:12 +0000 (UTC), "W. Baker" > >: wrote: > >: >: > >: >: >That's about when I was there. I broke the arm a few days ater Labor day >: >: >and IIRC we were both sufering about the same time and grousing on asd. >: >: >Boy, was that quite literally , a painful time in our lives:-) >: >: > >: >: >Wendy >: > >: > >: >: Yes, it surely was. I will never forget how kind you were, Wendy. At >: >: that time I thought I would never stop hurting. Hearing from someone >: >: who sympathized and knew what it was, was wonderful. Mine happened in >: >: November, so it was just after yours. A friend of mine whose husband >: >: is a doctor told me NOT to go to the guy who did your surgery. She >: >: said I should go to a different one, and I did. That may hold some >: >: explanation of the difficulty you had. >: > >: >: Evelyn >: > >: >I came through the Margaretville Hospital, which is now connected to the >: >Kingston one, which has more facilities. I was initially treated in >: >Margaretville and then shipped down in ambulance to Kingston with Syd >: >following in our car(I could not sit in a carwith the loose bones(3 >: >fractures in the humerus) I was just given a doctor, who originally set >: >it, but then told aobut the rodding possibility. I had no local >: >connections. The doctor seems to have done a good job, but was kind of >: >soulless, while his assistant was a lovely and very competent man. I >: >forget all their names. >: > >: >Wendy > > >: I can relate. What I do remember was the excruciating pain. I was >: unable to think it was so bad. > >: Evelyn > >Yes, indeed! When we had our auto accidnet near Shandaken a few years >later, I remember moving everything and lying there unable to see because >of the blood in my eyes thinking that I knew I hadn't broken any bones >becuse there was nonof that pain, just abrasion, bruise adn head banged >all much less severe. > >Wendy Life often hurts. :-( Evelyn |
Julie
On 1/6/2012 9:49 PM, Ozgirl wrote:
>> i ate, oh, 6 to 10K calories a day >> >> my Dr never did believe me > >> kate > > Easy to do when you are still growing :) Now that we are not.... I am > often amazed at how much my kids pack away each day without putting on > weight (other than the growing weight as they get taller and bones > bigger etc). Anthony is still growing at 22. Jazz seems to have hit > where she is going stop. The really noticeable growth is Alex at 17. He > seems to grow overnight ;) Its summer here and that's the growing season > for kids here. Jan, i was 32 yrs old and eating at that level however, my activity level would match/beat an 18 yr old (ask my brother, whom i used to pick up at the 'stop point' after i got home and got my station wagon for his bike and him LOL) my brother is far fitter than i am today, and ya, there is NO WAY i could even entertain eating like i did in those days! lol kate |
Julie
On 1/6/2012 9:49 PM, Ozgirl wrote:
> Its summer here and that's the growing season for kids here. and YES why do kids grow so much more during the summer??? kate |
Julie
Tiger Lily > wrote:
: On 1/6/2012 9:49 PM, Ozgirl wrote: : > Its summer here and that's the growing season for kids here. : and YES : why do kids grow so much more during the summer??? : kate maye not having to fight the cold? But why in oz where it is not that cold? Wendy |
Julie
"KROM" > wrote in message ... > for me it wasnt that I didnt care how others felt..it was more like > "getting the thought out" > > I've been sort of lucky with the analogies lately so hers another.. > > imagine running a marathon to get to somebody and trying to talk to > them..your loud and gasping etc because of the effort you put in to > deliver the message and are annoyed that the recover isn't happy to > receive it after all that effort. > > see we are so internal that its a huge effort to go outward and when > its not well received we get upset. > > I still often do but have learned to view it as "yes my message was > important but the receiver isn't as tuned in to me" so i expect them > to not get it and it upsets me less. > > though it is very frustrating to me when a person asks me to repeat > myself etc. > > it is a huge effort to talk to people for me and like after the office > Christmas party I am exhausted from the effort to be external > > luckily there was food and I pretended to be very intent on my > meal..lol > > KROM lol. My son is very sociable but he talks almost exclusively on one subject at a time. Either music or movies (including everything about producers/directors as well as cast and plots). If people try to change the subject he tries to being it back to his pet subjects and if that doesn't work he walks away. He will never have a discussion about anything that doesn't suit him. |
Julie
"KROM" > wrote:
> for me it wasnt that I didnt care how others felt..it was more like > "getting the thought out" > > I've been sort of lucky with the analogies lately so hers another.. > > imagine running a marathon to get to somebody and trying to talk to > them..your loud and gasping etc because of the effort you put in to > deliver the message and are annoyed that the recover isn't happy to > receive it after all that effort. > > see we are so internal that its a huge effort to go outward and when > its not well received we get upset. > > I still often do but have learned to view it as "yes my message was > important but the receiver isn't as tuned in to me" so i expect them to > not get it and it upsets me less. > > though it is very frustrating to me when a person asks me to repeat > myself etc. > > it is a huge effort to talk to people for me and like after the office > Christmas party I am exhausted from the effort to be external > > luckily there was food and I pretended to be very intent on my meal..lol KROM, Please email me. In discussing our grandson, my wife asked me some questions about you. Thanks. -- Nick, KI6VAV. Support severely wounded and disabled Veterans and their families: https://semperfifund.org https://www.woundedwarriorproject.org/ http://www.specialops.org/ http://www.helpforheroes.org.uk/ ~Semper Fi~ http://www.woundedwarriors.ca/ http://www.legacy.com.au/ ~Semper Fi~ |
Julie
"KROM" > wrote in message ... > Certainly! > > you might find a medium you can both do together to reach him a bit. > > I would try clay as thats tactile and let them pick out whatever else > they wish to use Interesting that you mention clay. In all my experience with people with intellectual disabilities (not just people within the autism spectrum) I have found that they abhor textures like clay, play dough, jello etc and can go quite ballistic if something like that is put in their hands. A safe bet is to have a few different things on a table and let them choose. If they remember a bad experience with a texture they will automatically avoid that item but if they have no experience one would have to be prepared for an explosion ;) > what you do is dont interrupt his drawing/painting etc...you get on > the floor and do your own with supplies for him to join in if he > wishes > > if he does engage dont freak out..stay quiet and calm and ask him > pertinent questions like "I like that can you show me how to make > one?" > > dont ask what the thing is or guess at it if you dont know..that > will frustrate and shut them down Like, that is a nice picture of mummy and daddy, to find out it is the family dog ;) Almost all of the people I have had experience with autism (through my work when I was a housemother to intellectually disabled males and people I have met through Jasmine's school, therapy centres etc) don't speak at all. But I probably get to see people with profound disabilities given that Jasmine has been assessed as having a severe intellectual disability. My experience with people with Aspergers for example has been my friend's son and husband for the most part. |
Julie
"W. Baker" > wrote in message ... > Tiger Lily > wrote: > : On 1/6/2012 9:49 PM, Ozgirl wrote: > : > Its summer here and that's the growing season for kids here. > > : and YES > > : why do kids grow so much more during the summer??? > > : kate > > maye not having to fight the cold? But why in oz where it is not that > cold? It gets cold :) Its just that most of or population life in coastal area where temps are more moderate. But there are certainly people who live inland that experience extremes of temperatures at both ends of the scale. We also get snow inland. Northern Australia is in the tropics but southern Australia is getting pretty close to Antarctica :) But I think the fertilisation and warmth of summer is the key to kiddy growth ;) |
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